The 20 Best X-Linked Myotubular Myopathy Doctors Near Me in Ann Arbor, MI

Find the Top X-Linked Myotubular Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 5 doctor with experience in X-Linked Myotubular Myopathy near Ann Arbor, MI. Of these, 4 are Experienced and 1 are Advanced.

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5 providers found
    Advanced in X-Linked Myotubular Myopathy
    Neurology | Neuroradiology
    Advanced in X-Linked Myotubular Myopathy
    Neurology | Neuroradiology

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception C, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Ann Little is a Neurologist and a Neuroradiologist practicing medicine in Ann Arbor, Michigan. Dr. Little is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 63 other conditions, according to our data. Her clinical expertise encompasses Inclusion Body Myositis, Polymyositis, Myasthenia Gravis, Stent Placement, and Transmyocardial Revascularization.

    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics
    Experienced in X-Linked Myotubular Myopathy
    Medical Genetics | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
     (0.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Mark Hannibal is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Hannibal is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 166 other conditions, according to our data. His clinical expertise encompasses Aase Syndrome, CHARGE Syndrome, Cockayne Syndrome Type 2, and Hennekam Syndrome. Dr. Hannibal is board certified in Clinical Genetics & Genomics.

    Experienced in X-Linked Myotubular Myopathy
    Neurology | Neuroradiology
    Experienced in X-Linked Myotubular Myopathy
    Neurology | Neuroradiology

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception C, 
    Ann Arbor, MI 
     (0.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Feldman is the director of the NeuroNetwork for Emerging Therapies at Michigan Medicine and the ALS Center of Excellence at Michigan Medicine. The latter includes the Pranger ALS Clinic, one of the top multidisciplinary clinics caring for those suffering from amyotrophic lateral sclerosis (ALS). She serves as the University of Michigan James W. Albers Distinguished University Professor and the Russell N. DeJong Professor of Neurology at Michigan Medicine. Dr. Feldman is one of the world’s leading authorities on neurodegenerative disease.Dr. Feldman is a compassionate and dedicated physician who cares deeply about her patients. She has been recognized for her clinical excellence by numerous organizations and is annually named as one of the “Best Doctors in America.” Her forward-thinking, collaborative, multidisciplinary approach has transformed how neurodegenerative diseases are diagnosed, treated, and prevented.Dr. Feldman has made significant contributions to biomedical research and clinical care in many critical areas of neurodegenerative disease. She has authored over 530 peer-reviewed publications, 74 book chapters, and 5 books on the pathology, diagnosis, and treatment of neurological diseases. Dr. Feldman has been continuously funded by the NIH since 1989 and is currently the principal or co-investigator of numerous clinical trials and grants. She has received numerous awards and honors throughout her remarkable career, including the University of Michigan’s Early Distinguished Career Award, the Distinguished Faculty Achievement Award, and the Distinguished Alumnus Achievement Award. She was also the first woman in 25 years to receive the Robert S. Schwab Award from the American Clinical Neurophysiology Society. In 2022, Dr. Feldman was awarded the University of Michigan Distinguished Professorship, the highest faculty honor at University of Michigan.Dr. Feldman is actively committed to and involved in professional service. She served as President of the Peripheral Nerve Society from 2007-2009 and President of the American Neurological Association (ANA) from 2011-2013. Dr. Feldman is an elected member of the National Academy of Medicine (NAM) and Association of American Physicians, and a Fellow of the American Association for the Advancement of Science. Dr. Feldman is the Editor of the Contemporary Neurology Series and also serves on a number of editorial boards for leading scientific journals, including The Lancet Neurology, Nature Reviews Neurology, JAMA Neurology and Journal of Neurology, Neurosurgery and Psychiatry. Dr. Feldman is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Peripheral Neuropathy, Diabetic Neuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Autonomic Neuropathy. Dr. Feldman is board certified in Neurology and Electrodiagnostic Medicine.

    Learn about our expert tiers
    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Pediatric Rehabilitation Center

    2205 Commonwealth Blvd, 
    Ann Arbor, MI 
     (3.0 miles away)
    Languages Spoken:
    English

    Dr. Hornyak is Medical Director of Outpatient Pediatric Rehabilitation Services. He serves on the Evidence Based Practice Committee, and chairs the Evidence Committee, for the AAPM&R. He is actively involved in medical education, serving on the steering committee of the UM Academy of Medical Educators. His teaching has been recognized with departmental (Silver Crutch x 4), medical school (inaugural League of Educational Excellence) and university (Provost’s Teaching Innovation Prize) awards. Dr. Hornyak taught the medical portion of the Team-Based Clinical Decision Making course, the first course offered at UM for Inter-professional Education. He frequently serves on graduate student committees in the UM School of Kinesiology as well. Clinically, Dr. Hornyak practices pediatric and adult PMR. Since joining UM, he has been key in the development of multi-disciplinary care clinics for children and adults with neuromuscular diseases. Dr. Hornyak is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), Cerebral Palsy, and Spasticity. Dr. Hornyak is board certified in Physical Medicine & Rehab.

    Experienced in X-Linked Myotubular Myopathy
    Experienced in X-Linked Myotubular Myopathy

    Burlington Building

    325 E Eisenhower Pkwy Ste 100, 
    Ann Arbor, MI 
     (4.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Rodriguez is Medical Director of the Wheelchair Seating Clinic and PM&R Administrator in the Michigan Bowel Control Clinic and the Wound Care Clinic. She has been actively involved in research with the Spinal Cord Injury Model System. She has written and collaborated on several research publications and written chapters on SCI sequelae in premier journals and textbooks in PM&R. Dr. Rodriguez has been recognized for her teaching of trainees with the Silver Crutch award. She is the associate SCI fellowship program director. She also serves on the International Standards and Autonomic Standards Committees, two crucial committees of the American Spinal Injury Association that are responsible for development of any new standards documents related to SCI, continuous review and improvement of the existing ASIA documents on neurological and autonomic standards and development and oversight of the International Data Sets project. Dr. Rodriguez is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 43 other conditions, according to our data. Her clinical expertise encompasses Neurogenic Bowel, Paraplegia, Spasticity, and Autonomic Dysreflexia.

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    Last Updated: 04/28/2026

    What is the definition of X-Linked Myotubular Myopathy?

    X-linked myotubular myopathy (XLMTM) is a type of centronuclear myopathy, which is a group of rare, inherited conditions that affect the muscles. XLMTM, specifically, occurs almost exclusively in males and is characterized by progressive muscle weakness (myopathy) and decreased muscle tone (hypotonia) that can range from mild to severe. The muscle problems impair the development of motor skills such as sitting, standing, and walking, and may disrupt primary functions such as breathing and feeding. XLMTM is caused by changes in the MTM1 gene and is inherited in an X-linked recessive manner.

    When should I see a X-Linked Myotubular Myopathy doctor near Ann Arbor, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a X-Linked Myotubular Myopathy doctor near Ann Arbor, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank X-Linked Myotubular Myopathy doctors near Ann Arbor, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by X-Linked Myotubular Myopathy doctors near Ann Arbor, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a X-Linked Myotubular Myopathy doctor near Ann Arbor, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different X-Linked Myotubular Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a X-Linked Myotubular Myopathy doctor near Ann Arbor, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my X-Linked Myotubular Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my X-Linked Myotubular Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female X-Linked Myotubular Myopathy doctors near Ann Arbor, MI?

    Look for the filter feature on the left side of the X-Linked Myotubular Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a X-Linked Myotubular Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the X-Linked Myotubular Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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